Alex Webb is a boy who can never feel the Sun on his face. He is not just sensitive to its rays – just minutes’ exposure could cause irreparable damage.

His school and car windows need protective films to make sure no ultraviolet (UV) light penetrates.

Alex has a rare condition called Xeroderma Pigmentosa (XP).

XP impairs the ability of the body to repair damage to DNA caused by UV light.

It affects about 100 people in the UK and can cause skin cancers, eye and neurological problems such as hearing loss, learning difficulties or difficulty walking.

He does take part in sports day and in between races he sits in a UV protective tent Sandra Webb

Alex’s mother, Sandra, first noticed her son had sun sensitivity when he burnt through the car window at the age of seven weeks.

And at the age of 11 months, he sustained a deep skin burn around his eyes, lips, nose and cheeks.

“We were on a holiday in Austria as we were living in Germany,” she said. “It was the combination of sun and snow, and he really had a very severe sunburn … Continue Reading

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